GOVERNMENT RECRUITMENT / VACANCIES
National Registry for Rare and Other Inherited Disorders (NRROID) Protocol
By TEAM CIRCULAR EXPRESS • 08 Aug 2026
👁 7 views
The Indian Council of Medical Research (ICMR) has established the National Registry for Rare and Other Inherited Disorders (NRROID) to address the lack of comprehensive data on rare diseases in India. The registry aims to systematically collect clinical, genetic, and biologic data to support research, clinical trials, and policy prioritization. It serves as a longitudinal patient registry to build a knowledge base for heterogeneous rare conditions. The document outlines the registry's objectives, governance, data management, and implementation framework. This initiative aligns with the implementation of the National Policy for Rare Diseases in India.
purpose of issuance
To establish a national registry for rare and inherited disorders to facilitate research, policy planning, and clinical understanding.
Most Important Details
The registry (NRROID) was initiated on 01.11.2019 under ICMR grant CAR-2019-00-00002, with Dr. Amlin Shukla currently serving as the Program Officer and Coordinator.
purpose of issuance_1
To establish a national registry for rare and inherited disorders to facilitate research, policy planning, and clinical understanding.
Most Important Details_1
The registry (NRROID) was initiated on 01.11.2019 under ICMR grant CAR-2019-00-00002, with Dr. Amlin Shukla currently serving as the Program Officer and Coordinator.
🔒 Document — view only
Regards, Circular Express
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GOVERNMENT RECRUITMENT / VACANCIES
National Registry for Rare and Other Inherited Disorders (NRROID) Protocol
By TEAM CIRCULAR EXPRESS • 08 Aug 2026
👁 7 views
The Indian Council of Medical Research (ICMR) has established the National Registry for Rare and Other Inherited Disorders (NRROID) to address the lack of comprehensive data on rare diseases in India. The registry aims to systematically collect clinical, genetic, and biologic data to support research, clinical trials, and policy prioritization. It serves as a longitudinal patient registry to build a knowledge base for heterogeneous rare conditions. The document outlines the registry's objectives, governance, data management, and implementation framework. This initiative aligns with the implementation of the National Policy for Rare Diseases in India.
purpose of issuance
To establish a national registry for rare and inherited disorders to facilitate research, policy planning, and clinical understanding.
Most Important Details
The registry (NRROID) was initiated on 01.11.2019 under ICMR grant CAR-2019-00-00002, with Dr. Amlin Shukla currently serving as the Program Officer and Coordinator.
purpose of issuance_1
To establish a national registry for rare and inherited disorders to facilitate research, policy planning, and clinical understanding.
Most Important Details_1
The registry (NRROID) was initiated on 01.11.2019 under ICMR grant CAR-2019-00-00002, with Dr. Amlin Shukla currently serving as the Program Officer and Coordinator.
🔒 Document — view only
Regards, Circular Express
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FAQs on Recruitment Rules and Procedures for Central Government Posts
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Minutes of Committee Meeting for Compassionate Appointment to Multi-Tasking Staff Posts
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#Bhopal#Contract#Contractual
Corrigendum for Extension of Application Deadline for Secretary Post at IIAS Shimla
#Extension
Recruitment for the Post of Director at Rain Forest Research Institute, Jorhat on Deputation Basis
#Assam#Deputation#DOPT
Cut-off Marks for Section Officer (Grade B) Limited Departmental Competitive Examination 2025
#UPSC
